We have had a really busy week with medical appointments. Chemo Wednesday and a trip to Orlando on Thursday to see a group of doctors who are now running a Neurofibromatosis clinic. We got a lot of good information and though some of it was not what we wanted to hear, we feel good about their knowledge of NF and brain tumors.
We went to the American Cancer Society Families R.O.C.K weekend in Orlando this weekend. We came away with some valuable information to discuss with Mandy's medical team. Plus, we got to hang with our buddies the Dicksons and the Cavanaughs. It was a great event, we learned a lot and the kids had a great time.
A bit of housekeeping, just as an FYI, the restricted accounts for all the patients at the Children's Cancer Center are being closed. Any further donation made to the Center in Mandy's name will not be specifically for her as it has been in the past. The donation will now be a general donation to the Center. We will be using our Paypal account specifically for donations for Mandy from this point forward. The information appears over under Mandy's Fund on the right of the page. We have been so touched by so many peoples kindness and generosity. Thank you so much. You have truly lifted our hearts with your love and kindness.
Most importantly, a very special friend lost a very special husband early this morning and two very special children lost a very special father after a long battle with Glioblastoma, the nastiest of brain tumors. Please say an extra prayer for this beautiful family. Tyra and Steve shared a love that was the stuff of movies and novels. He was far to young to be taken by such a dreadful disease. I know the gates of heaven were thrown open wide to welcome such a warm, kind and giving soul. Steve Damm, I am honored to have known you. The world is a better place because you were in it.
Please remember to say I love you often. You can never say it, or hear it enough.
Love to all~