It has been just over a year since Mandy had her last chemo. She has pink in her cheeks, bounce in her step, thick and healthy hair and an energy that seems to know no bounds. Tomorrow we go for the one year scan. If that is stable, we will schedule the surgery to remove her port and let go of the last of the physical reminders of the war. We are going to make a necklace or maybe a Christmas ornament out of it. Just so we always know that ultimately, we were very blessed that out of something so scary and so ugly came something beautiful.
Alannah is 16 now and will get her drivers license soon. If you have an errand to run, she's your girl... she will be more than willing to drive anywhere for any reason, I'm sure. Now, if only she had a car.
Zachary is in middle school now and slowing discovering that maybe girls don't have cooties. He is as funny and charming as ever, God help me.
I started school almost 6 months ago. When I grow up, I want to be a nurse and in another two years or so, hopefully, I will be. Pediatric oncology has my heart and I really want to be able to do something there. But, I just finished my labor and delivery rotation and absolutely loved it. I am truly passionate about nursing and really feel like this is the career I am supposed to have.
And, after 19+ years, Ronnie and I are no longer married. The why's and how's and coulda, woulda, shoulda's don't matter now. I am grateful for our marriage and for our children. And I believe, we can both go forward and find joy and love and happiness.
Hopefully, tomorrow brings more news of stable tumors. I will let you know.
Love to all~
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One little girl battling NF1 and optic glioma ... with an army of love behind her.
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About Mandy
Mandy was diagnosed with Neurofibromatosis Type 1 (NF1) on Oct. 23, 2001, her first birthday. She was diagnosed with a bilateral Optic Gliomas on Feb. 18, 2008. This malignant diagnosis prompted her starting chemotherapy. She also has a several tumors in the ventricle areas and brain stem that are beliveved to be benign, but cause problems by taking up space in a very vital area.
Joining Mandy in her fight are her parents, her brother Zachary and her sister Alannah.
CONTACT US:
Natalie Willis
pursuitgoldens@gmail.com
Joining Mandy in her fight are her parents, her brother Zachary and her sister Alannah.
CONTACT US:
Natalie Willis
pursuitgoldens@gmail.com
Mandy's Fund
Unfortunately, the restricted accounts for all patients have been closed at the Children's Cancer Center. At this time, any donations made to the Childrens Cancer Center would be a donation just to the Center and not available to Mandy or for Mandy's care.
If you would like to make a donation specifically for Mandy, you can make a Paypal donation to pursuitgoldens@gmail.com
Donations will be used only to pay medical costs and expenses related to her care.
Thank you so much for your kindness and generosity to our daughter and our family. Our hearts are lifted by all the love shown to us.
If you would like to make a donation specifically for Mandy, you can make a Paypal donation to pursuitgoldens@gmail.com
Donations will be used only to pay medical costs and expenses related to her care.
Thank you so much for your kindness and generosity to our daughter and our family. Our hearts are lifted by all the love shown to us.
Friends and causes
All images and text copyright (c) 2007-2008 Natalie Willis. Unauthorized use prohibited.
Want something? Just ask: pursuitgoldens (at) gmail dot com.
5 comments:
Thank you for the update, Natalie. Keeping our fingers crossed for good news from the MRI today.....
Perez Family will be praying that all goes well.My 6 yr old is fighting Wilm's Tumor we are at the cross roads of anything can happen and it has. Glad to see you are staying strong,,
God Bless
Perez Family will be praying that all goes well.My 6 yr old is fighting Wilm's Tumor we are at the cross roads of anything can happen and it has. Glad to see you are staying strong,,
God Bless
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And, after 19+ years, Ronnie and I are no longer married. The why's and how's and coulda, woulda, shoulda's don't matter now. I am grateful for our marriage and for our children. And I believe, we can both go forward and find joy and love and happiness.
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